Updates GALORE!!! 1st and foremost, clinic called last week and we got yet ANOTHER culture back that was negative for pseudomonas!! Thank you, God, for this 'little' reprieve. I know how quickly those nasty bugs can sweep in, so I'm just thankful for each and every day that is (for the most part) cough-free.....
This last week has been a VERY eventful one in the Mack house! We are officially pacifier-free AND little Miss Rylan is wearing big girl undies! (Maybe instead of saying it's been an EVENTFUL week, I should say it's been a week full of mishaps, messes, and tantrums??!) I will spare you the adorable pictures of little naked buns running away from the camera and down the hallway, and leave you with this picture instead.....
These cute little monster slippers have been THE BEST tool in getting her potty trained!!! She is one of those sweet little beings that could care less if her pants get soaked, if the barstools get soaked, if the carpet underneath Daddy's office desk gets soaked, if her brother's lego airplane that was placed a little too close to her gets soaked, etc.....BUT, she REFUSES to have her new little monsters slippers get soaked. And what would be the 1st things to pool up if she doesn't make it to the bathroom in time? Yep, you get the point.....so, if any of you are knee deep in potty training (and carpet cleaner), I URGE YOU to add new slippers to your child's wish list!!! You won't regret it! And if for whatever reason they don't work for potty training your child, you'll still end up with some REALLY cute pictures that will haunt your child for the rest of their life!!!
My stepdaughter had a hard time potty training until we let her pick out her own underwear. She choose Princess underwear, of course, and the accidents soon stopped. She simply couldn't stand the thought of peeing on Cinderella's face. ;)
I am a 30-something stay-at-home mom whose daily ramblings may never change the world, but they just might save my sanity. This is my journey of raising a son & his 'cyster', in the hopes that sharing our story will help spread awareness for cystic fibrosis.
Daddy
The most amazing dad/super-hero you will ever meet. I knew from the moment I met him he would be a great dad, but I could never have imagined the truly AMAZING father he would become. He is my rock & our kids' favorite playtoy. I truly can not imagine life without him. Thank you GOD for bringing this Prince Charming into my life.
Big Brother
My son...the light of my life. He is so many things. Sweet. Adventuresome. Handsome. Mild mannered. His sister's hero. Unbelievably kind. Curious. Mindful. Athletic. Imaginative. Oh, and did I mention sweet? There are not enough words in the world to describe everything this little man is to me. He is what puts a smile on my face through it all...
Little 'Cyster'
My baby girl. Kohen's beloved little sister. Daddy's angel. She has turned our world upside down and inside out, and yet make it perfect all at the same time. She was diagnosed with cystic fibrosis when she was 2-weeks old. My son changed my life, my daughter changed my world. She has given me gift, after gift, after gift. She has taught me so many lessons on life and love. She has shown me how to REALLY live in the moment and to TRULY appreciate everything, no matter how small the blessing.
About Cystic Fibrosis
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. With advancements in treatments and medications, many people with the disease can now expect to live into their 30s, 40s and beyond. This is why I will fight for my daughter's cureevery day of my life. An average life expectancy of 37 years just isn't ok with me.
Rylan's Current Treatments
Vest treatment 30 min, 2-3x per day
Albuterol nebulizer 2x per day (opens airways)
Pulmozyme nebulizer 1x per day (thins mucus)
Cetirizine 1/2 tsp 2x per day (seasonal allergies)
My stepdaughter had a hard time potty training until we let her pick out her own underwear. She choose Princess underwear, of course, and the accidents soon stopped. She simply couldn't stand the thought of peeing on Cinderella's face. ;)
ReplyDeleteGreat news on the negative culture!